Tuesday, 23 December 2014

Cancer Holidays - Week 15 - Merry Christmas and Happy New Year!

This one will be a short one - just an update on where I'm at...

I had acupuncture with "Bruce" last week - as expected he is a hippie granola kind of guy (he has long hair but he had it in a french braid when I saw him, need I say more...). Anyway, he practices Japanese acupuncture (I didn't know there was such a thing). Its much more like acupressure - he poked around me a bit before inserting any needles. The coolest thing is that he sent me home with these bandaids that actually have tiny, tiny needles in them so that I can do my own acupuncture when I want to - so some of them are for these re-occurring hot flashes I still have from chemo, to make my tumour softer (it really works) and to help relax my neck muscles which are chronically tight from my previous spinal cord surgeries. Here's what they look like:

This is my calf - and the tumour acupuncture spot - in case you are wondering. Apparently they will stay on for about a week or so. Then I went to massage a few days later and my massage therapist Meagan lost her mind when she started the massage because she said there were areas where she has been working for years that released very easily and she credits this to Hippy Bruce's acupuncture. This has also been her response after I've had acupuncture with Tran too but so much more after Hippie Bruce's techniques. So I've got the next few months with Hippie Bruce since Tran is away until February so we'll see how it goes but so far, its weird and yet promising. 

I also had an appointment with Dr. Craig as well as Dr. Beaulieu (surgeon). Dr. Craig was impressed with my resolve to stay on my diet and said I was doing pretty well if I feel guilty about eating a piece of toast or two at breakfast (I do eat a few carbs a day to try to put on some weight and actually feel full). Dr. Craig also changed all of my supplements - he said now that chemo is done, this was our opportunity to hit the cancer with as many supplements as we can before my surgery. I had quite a few general 'cancer questions' for him from the reading I had done in the past few months (by the way, if you want any recommendations on cancer books, I think I've read about 7 or 8 so let me know). As usual, Dr. Craig answered all of my questions very well and we left with a bag of new supplements and answers!

Then the same day we met with Dr. Beaulieu the surgeon. She was pleased with the effect that the chemo has had on my tumour (its about the size of a pea now - maybe 1 cm - it was 6 cm when I started chemo) but seemed a bit hesitant on what type of surgery because she wants to be sure that a lumpectomy is the correct choice. So, I have to have an MRI before surgery to confirm tumour size and location which means that I'm not 100% sure that it will be a lumpectomy but I'll know this before my surgery after my MRI. 

Surgery is booked for January 13th (13 is my lucky number, no kidding). At first I was a bit disappointed that I wasn't able to have it earlier because January 13th is 5 weeks after my last chemo and the last doctor I saw at the Cancer Centre said they don't like to go past 5 weeks because they want to limit the opportunity for the tumour to grow back again. Also, I was feeling a bit apprehensive myself about this situation for the same reason but as you know, I keep track of this little tumour of mine measuring it everyday, so if it does seem to start growing again I'll know it! But after a few days of thinking about it, I decided that this is an opportunity to get back into shape and sort of do a little experiment on myself to see if these supplements that I take work (by 'work' I mean keep the tumour the same size or keep it shrinking). Wouldn't it be crazy if it shrunk the tumour!?! I bet everyone's minds would blow!

I just got home from an afternoon of bowling with my group and guess what? I won the prize for the worst bowler! Yes! I tried to claim that I had a handicap what with the cancer and all but it didn't really fly but it was fine with me because that meant I won a prize. This is what I won:


What is this you ask? Its a board that you can draw on with water and as it dries, it disappears. It is intended that you do art work on this board but I think it would be much more useful for Dom to put his complaints on it and I will read it later - haha. 


A huge thank you to everyone to that has supported us these last three months, its not where I thought I'd be at this time in my life but I cannot complain with all of the love, support, positive vibes, emails, texts, phone calls, food and visits that you all have given us, its been very humbling. 

And I think that's it - we are staying around home for the Christmas - so Ottawa friends, we are around if you want to hang out. Oh and thank you to everyone who has sent us Christmas cards - I've been saving them to open on Christmas day.

If you read my last blog I said there were no promises when it comes to Christmas cards and I have followed through on this - there are no Christmas cards because I tried to make one on Walmart's website a few weeks before Christmas, got really frustrated, then it looked like the resolution on the card was going to be bad so I only ordered one. Then Walmart did not live up to their 5-day promise so I just picked up the test card yesterday (the plan was to order one and if it looked okay to order a pile). So here is the card for everyone who is reading my blog - which is admittedly more people than I would have sent this card to, so in keeping with one of my favourite mantras 'it always works out in the end'. I don't need to say anything more, see you in 2015!



Monday, 15 December 2014

Cancer Holidays - Week 14 - First Period of the Cancer Game is Over: Melanie 1, Cancer 0

That's right, I'm using a hockey analogy to describe my cancer treatment - its impossible not to in the house that I live in. For those of you who don't know, Dom is a huge Habs fan and despite this I am not a hockey "fan" - I don't mind it, I just don't really pay much attention to it - but by sheer osmosis, here I am using a hockey game analogy on my blog of all places.

On a side note, a lot of you have been asking what happened to Dom's eye. No, he didn't get into a fight at the soccer game - Dom has to wear prescription goggles because he has this weird hang up with his eyes so he refuses to wear contacts (he also has weird hang ups about mice, ants...) and so he had some sort of collision with another player and got the ball in the eye - well more like on his goggles which gave him the black eye.  If you ever want to gross Dom out just talk about something to do with your eyes and he'll get totally freaked out. My favourite thing to do is every once in awhile when I'm vacuuming, I ask Dom 'what do you think would happen if I put this close to my eye?' and he wilts like a fragile flower. So funny.


So Friday was a big day for me - the end of chemo and I got my PICC removed! 

I arrived at chemo with my theme socks on ready to go:



Dom had me all tucked in - he called it a chemo cocoon. 


I had a super nice chemo nurse, Cheryl - she was even nicer when I gave her a pile of dark chocolate and a card thanking her and all of the chemo nurses for making chemo seem "not that bad". On Thursday during our regular pre-chemo phone call, Becky, Courtney and I were wondering about the PICC removal...Anyway, chemo nurse Cheryl said the PICC removal was pretty quick as long as it doesn't get stuck - that sounds gross I know. So let's back up, the PICC looks like this:

The purple thing is what I've been walking around with for three months sticking out of my arm with an IV line that leads to the plastic T-thing and the green line that's under the clear bandaid. The clear bandaid is what they have been changing every week when I go for PICC cleaning. If you follow the green line around, you can see how it disappears into my skin - this is where it goes in my arm and takes a ride all the way to my heart - that's right, its about 35 cm long and goes all the way to my heart. If you can see the black dots on the green line, those are measurements of centimetres - that's how they tell if the PICC is in the right spot. If you remember I was complaining a few weeks ago about it being pulled out by the nurses that were cleaning my PICC and that's how we knew it was coming out - it started at 2 cm (2 dots) and by Friday it was at 5 cm (5 dots). 

Anyway, coincidentally as I was getting chemo, the lady across the aisle from me was just finishing chemo and getting her PICC removed so I totally watched her get it out. Dom had just left to go get coffee so I frantically texted him to tell him that he was missing a live pre-view of a PICC removal. He made it back just in time to get a good look at what we were going to see done to me after chemo. 

So, after chemo, chemo nurse Cheryl took my PICC out - we took a video - its gross so if you are squeemish at all and don't like blood, DO NOT WATCH THIS VIDEO. I don't want to get whiny comments after I post this blog from people saying they barfed a little bit in their mouth after they watched this. Its a quick video, in fact chemo nurse Cheryl said it was the fastest PICC removal she's ever done - she said "it was like butter." That's a direct quote.

Here's a link to the video if for some reason its blocked on your computer:

https://www.dropbox.com/s/5xnq73ymq51lv31/2014-12-12%2013.55.52.mp4?dl=0 



Kidding! That was a test video - are you really sure you want to see this?? The end is the worst so here it is, the real thing:  

https://www.dropbox.com/s/cdyvlr5ier9rett/2014-12-12%2013.58.47.mp4?dl=0



Isn't that gross?!? But I'm so glad its out. I had my first shower on Sunday (I've been sticking with baths since it was way too much work to shower and keep my arm dry). I feel like a new woman! 

And here is the pièce de la résistance - when you are finished chemo they have a bell that you get to ring on the chemo ward and everyone claps. When I first heard about this I didn't think it was much of a big deal but after the past three months I have so been looking forward to reading this bell!! Here is the last video of the day - we missed the bell ringing on the video but the happy dance is definitely the best part of the video (in my humble opinion). 

https://www.dropbox.com/s/8jpb3n3ms6t8gv8/2014-12-12%2014.05.22.mp4?dl=0



That's right at the end is a P.K. Subban move that he does when he scores a goal (remember I mentioned the hockey osmosis?) - I think its appropriate seeing as so far the score is Melanie 1; Cancer 0.

Tuesday, 9 December 2014

Cancer Holidays - Lucky Number Week 13!

That's right, three days until my last chemo session and my PICC removal!!!!!!!!!!!!!!!!!!

I was at the oncologist today - I saw a different one again, Dr. Dent wasn't there - but she was the best one yet! Very nice and I had a bunch of questions which she answered very comprehensively. 

The best thing that happened this week is that I got the much anticipated cancer present from my friend Becky. Here it is:

 

This is no ordinary quilt - it has magical powers! No it doesn't - thats totally lame, do you think this blog is a kid's storybook? 

The reason it isn't ordinary is because Becky made it herself and this is a big deal for a few reasons (people like Selma are reading this probably thinking it isn't a big deal at all but that's because people like Selma can sew a pair of pants blindfolded...):
  1. I don't think Becky is very crafty - or maybe she is but I've known her for more than 30 years and I wouldn't point to craftiness as a quality to describe her. And I don't think that's an insult, some people are, some people aren't. I'm not and I'm totally comfortable with my lack of craftiness. 
  2. I didn't even know Becky owned a sewing machine or knew how to sew - you know why? Because apparently she has only used her sewing machine twice since grade 8! Do you know that means that in the past 25 years, Becky has sewn twice. Two times, that's it - and making this quilt is the #2 time. I don't know about you, but that's two more times than me (I also do not own a sewing machine and I don't foresee myself owning one unless I guess I inherit one or something like that...they sort of scare me actually). Anyway, so after only using her sewing machine one other time in 25 years she has managed to make an entire quilt just for me! Pretty friggin' awesome.
  3. For those of you that do not know Becky, she has a baby and a toddler at home so its not like she's got loads of time on her hands - and she has a dog, cat and a husband too!
So all in all, this is a great cancer present and if there was a competition - not that there is - but if there was a competition this one would win for the most blood, sweat and tears shed in creating a cancer present (according to Becky all three literally went into this quilt). What a fantastic gift! 

So for the rest of the week....

It was a pretty quiet week - the usual stuff - acupuncture, massage etc. Dom had a show in Montreal on Saturday night and I went to my friend Erin's housewarming party with Andrew, Laurel and Jonah. Good times. We also got some pretty delicious meals from people this week too. Yummy.

On Sunday, Dom and I turned into Grinches. Dom brought in the Christmas trees from the garage to discover that the squirrels chewed the crap out of the boxes and also ate through the cord of the small Christmas tree that goes in the basement. So as Dom was swearing in the basement splicing wires, I was swearing upstairs as I struggled with Walmart's online Christmas card program (I promise no one a Christmas card this year). After all of the swearing we put up the tree - Fat May got right into it - waiting for Santa already. 

 
On Sunday night I went over to Kersten's to help her make peanut butter balls for the City's United Way bake sale - so for those of you from work reading this, you had better buy some - those are peanut butter balls made by a cancer patient.


These are my share that I'm putting in the freezer until my cancer diet is over. Then I might just eat all of them at once.

On Monday I went to acupuncture and it was my last appointment with Tran until February *sigh* but it was okay. That shrieking lady was back again though for the first half of my appointment but luckily for me she left after Tran put in the pins and needles so the majority of my treatment was relaxing. 

That's it! This is a short one because next week's might be long - there may be some special features and I'll wait until after my appointment with Dr. Craig and Dr. Beaulieau (surgeon) so I'll have lots of information about the upcoming months of these Cancer Holidays. 

In the meantime, there's only 16 days until Christmas and I don't know about your house but for the past week we've had Magic FM on all of the time playing all-day and all-night Christmas music! I'm sure that Dom has only agreed to this because this cancer chick is insisting on it. Try it out - if you aren't in the Christmas spirit yet, you soon will be!

 
 

Tuesday, 2 December 2014

Cancer Holidays - Week 12 - Christmas...no I mean Chemo Countdown - 7 down, 1 more to go!

My 7th chemo was on Friday - can you believe how fast the time has gone by? It seems like my first one was sooo long ago (it was August 29). 

My friend Ann took me this time which is great - remember these chemos are 5 hours so that's a big commitment! Also this meant that Dom didn't have to take any time off of work to take me which is another plus for us. Good thing she volunteered before she knew what time it was - it started at 8:00 am which means that I had to pick up Ann at 7:30 am to make sure we got to the Cancer Centre on time.  I didn't sleep that great because I kept waking up checking the time worried that I'd be late - 8:00 am is the first time slot and I didn't want to mess up anyones day by being late. I don't think I've gotten up for anything that early in a while. 

But let's back up. First thing on the agenda, breast cancer lesson recap. Two people asked me the same question about breast surgery and radiation so I'm sure there are more of you that have the same question - I obviously didn't explain it properly. For anyone not interested in this topic, stop reading and skip this section and move down to wear it says "breast cancer lesson over". The reason that there are limitations to breast reconstruction if you are having radiation is because right now, radiation is the last treatment that you get - sort of like a 'just in case' kind of thing. So most people get surgery first, then chemo (if necessary), then radiation. It varies for a lot of people depending on the cancer, how bad it is, where it is etc - for example I had chemo first, then will have surgery, then radiation. But the main point here is that radiation is almost always last. In fact, with all of my reading I haven't read a single circumstance where radiation isn't the last treatment. What is radiation exactly? Well I had to google it and here is a good explanation from the breastcancer.org website:

Radiation therapy uses a special kind of high-energy beam to damage cancer cells. (Other types of energy beams include light and X-rays.) These high-energy beams, which are invisible to the human eye, damage a cell’s DNA, the material that cells use to divide.

Over time, the radiation damages cells that are in the path of its beam — normal cells as well as cancer cells. But radiation affects cancer cells more than normal cells. Cancer cells are very busy growing and multiplying — 2 activities that can be slowed or stopped by radiation damage. And because cancer cells are less organized than healthy cells, it's harder for them to repair the damage done by radiation. So cancer cells are more easily destroyed by radiation, while healthy, normal cells are better able to repair themselves and survive the treatment.

There are two different ways to deliver radiation to the tissues to be treated:
  • a machine called a linear accelerator that delivers radiation from outside the body
  • pellets, or seeds, of material that give off radiation beams from inside the body
Tissues to be treated might include the breast area, lymph nodes, or another part of the body.

Honestly, I could not have explained this better myself - also this is the best website in my opinion - easy to read information and they post latest news and studies on breast cancer so if you know of anyone who is looking for a good website let them know about breastcancer.org 

So back to our lesson, knowing what we know about radiation when it comes to reconstruction, you cannot get implants or natural tissue reconstruction before radiation because this process would damage your newly constructed boobs - either real or fake. So, this means that people who are getting surgery like a mastectomy (this also varies as to what is removed but basically it is the breast being removed) have to have this done first, then either chemo and radiation or just radiation (depending on the treatment plan) and you cannot have surgery until 6 months after radiation. So, if you are having a mastectomy you are looking at a minimum of 6 to 8 months until reconstruction and probably even longer when you think about treatment time, recovery time etc. When you wait this long, there isn't much to work with to reconstruct (nothing really) so there's a bunch of stuff that can be done to stretch the skin but you are basically starting with a flat, blank slate. Most of the innovations with breast reconstruction have happened when you are having the removal done at the same time as the reconstruction which is why for me, I am so hopeful that I can have a lumpectomy - that opens my options that much more for the future and gives me time to think about things. If I can get a lumpectomy now, I can look at doing something else (like mastectomy and reconstruction) later - like a year from now, if I think its a good idea. When you think about it, its sort of crazy that we haven't come up with something better in terms of options but its not like breasts are vital organs, you can live without them but for some people, not very happily - but that's a very individual thing. Make sense now? Hopefully it does. 

Okay, breast cancer lesson is over.

On Wednesday I met some friends for lunch - we have a standing "pre-chemo" lunch date which is great because Wednesdays before chemo are also my last days before fasting begins so its nice to have a meal out somewhere on those days. 

Thursday was my usual PICC cleaning and massage. Its also the day that I have a phone date with Courtney and Becky - we started this the first time I was having chemo - a 'pre-chemo' date, kind of like the pre-chemo lunch! We like it so much that we decided even after chemo we are going to keep up this tradition - we just have to come up with a different name for it because 'chemo phone call' doesn't have the best ring to it. Courtney and Becky are my oldest friends - I met Courtney when I was in grade 7 and I met Becky when I was in tiny tots (that was sort of like junior kindergarten back in the day) - that's a long time to be friends but well worth it.

Anyway, Friday went off without a hitch - chemo was normal, I slept for a bit then Ann and I managed to chat the rest of the time away. Oh and I found out that after my last chemo session in 10 days (not that I'm counting) the chemo nurse can take out my PICC line! This is so awesome - double bonus! The last day for chemo and I get my arm back - no more Glad Press n' Seal to wrap up my arm every time I want to shower!! Its the little things in life, really.

As usual, the steroids they gave me kept me up on Friday night so I had a restless night and was up early on Saturday after about 5 hours of sleep. On Saturday we took Fat May to get groomed at the Gatineau SPCA and ran some errands. Her bow lasted in her hair for one day which is longer than it normally does. This is not a flattering photo of Fat May but its the best I got before the bow disappeared.

On Saturday night a group of us had tickets to see Jenn Grant at the NAC so we met beforehand for dinner. I was feeling pretty much normal and with my fasting ending I was definitely looking forward to going out for dinner (nothing fancy, we went to a pub but it was good!). Here we are!



Looking at this photo afterwards convinced me of two things, well three - one, I have great Ottawa friends (and this is only a sample of my Ottawa friends). Two, I'm going to cut the last bit of hair I've got left and three, I'm going to start wearing my wigs. This new chemo has few side effects except that its been making what was left of my hair completely fall out. My hair was pretty much looking like this:
 
That's Gollum from Lord of the Rings and Rob Lowe from the new movie The Interview - I know I don't really look like either of these two but these are the two best comparisons that I could find - actually the Rob Lowe one was from a trailer that Dom showed me a few days ago where Rob Lowe takes off a wig and I was like "oh my god that's just what my hair looks like!" 

And don't ask me to put a photo up of what my hair looks like - I'm no Joan Lunden and this blog is no People magazine so no, you will not see me without hair - unless of course you are with People magazine then we can talk.

When I got home Saturday night, I realized that I had forgotten to get Dom to give me my kryptonite shot - it has to be done 24 to 48 hours after chemo and it was late - it was about 11:30 pm on Saturday night which meant that I needed to have the shot by Sunday morning. I didn't want to wait until the next day because I knew I wouldn't sleep well because I would be worried we'd sleep in on Sunday morning. Dom was over at Andrew's for poker night so when he got home he had to wake me up and give me the shot. I don't know if it was because I was so tired or because Dom had had a few beers at the poker game or he's just getting better at giving needles  - or the combination of all of these - but he did the best job so far. It sort of burns when I get the needle and the first time he gave it to me I bled. This time I hardly felt a thing.

Sunday was a lazy day for all of us - we all slept in, including the dogs. Dom put up the Christmas lights and went to soccer on Sunday night and came home with a black eye. 

I put this photo in because he looks like a felon - I'm not sure what he was thinking when he took this selfie but he's probably thinking twice about me having access to the photos that he takes with his phone. Although usually there are only pictures of beer...

Here's a better one of him with the black eye but still looking extremely serious and unpleasant... 



After soccer the felon cut my hair. At first he used an old set of clippers, that didn't work so well so then we switched to scissors to trim off the longer stuff and then migrated to his beard trimmer. Apparently, it was very difficult because my hair was like a baby's hair - very fine - also I think that its because he's a guy and every guy I know is super awkward with hair - even hair that's hardly there. Its as if they have never encountered hair in their lives, held a comb or brush or even know what it feels like to pick up a strand or two of hair. Anyway, we persevered. The weird thing is, I'm not bald my hair is just super thin - maybe everyone's is like that but my head isn't like - let's say my armpits which are completely bald. I don't think so though because I see people at the Cancer Centre and they are bald - totally bald and surely these people aren't getting out the straight razor and shaving their heads - are they? No, that would be crazy. 

Its all very weird but all in all I don't mind the new haircut - my hair is about an inch or two long. Diana was right - when you get rid of your hair, you are all face - but more so than just pulling back your hair in a ponytail. I don't know how to describe it but its different - and I figured out that my ears aren't nearly as big as I thought they were and neither is my forehead - you see, I have a nice tan line where my forehead begins - oh and I also have one where my part is, its weird. Anyway, all in all I don't mind the lack of hair. 

Yesterday I went to acupuncture - as Tran was leaving the room (after he put in the pins and needles) he said not to be scared but the woman in the next room was probably going to scream (yes, he said scream) while she was getting her treatment. I wasn't sure if he was joking or not but he wasn't...sure enough after about five minutes I could hear this woman shrieking in the next room - and not just once, repeatedly. After about 15 minutes Tran popped his head back in to check in on me and asked me if I was scared - I told him I was a little bit and afterwards when he came in to take out the needles and work on my back I asked him about the shrieking. Apparently it was some sort of massage technique, not acupuncture (phew) and that the woman was suffering from something that prevented her from walking but after her Tran-massage she could walk again. I don't know anymore details than that but honestly, I don't want to know and I'm never getting a massage from Tran.

I skipped curling last night - I mean I didn't go, not that I was the "skip". I was pretty tired and I didn't want to overdue it, plus Tran reminded me that I have to work on my bedtime. Also we went out for dinner with Dom's parents for his Dad's 65th birthday! AND we also went to Costco to get our freezer (our Christmas present from Dom's parents). This was also the first day of wearing my wig out in public. It wasn't too bad although it sort of gets uncomfortable to wear with my glasses because the wig squeezes my glasses against my head - good thing I've got four different pairs of glasses to work with! Dom's mom liked it so much she wants to get one for her bad hair days. I told her she could have mine when I'm done with them. That's it - here we are at dinner with the wig-debut. 










Tuesday, 25 November 2014

Cancer Holidays - Week 11 - Honey I Shrunk My Tumour!

Well technically I didn't shrink my tumour, the chemo did, but the tumour continues to shrink which is very promising and also makes me feel great. The reasons why it is promising are:
  1. They call it pathological complete response - pCR - this means that the tumour has completely disappeared or pretty much disappeared with chemo. There is no standard definition for pCR so some doctors say its when a tumour completely disappears while others say its when its reduced in size significantly (whatever that means). Regardless of this, the research has shown that people with tumours that have a pCR have a significantly better outlook in terms of recurrence rates. With two more chemos to go I'm aiming for pCR!
  2. The smaller the tumour, the easier the surgery - this was the whole point of having chemo before surgery - the technical term is neo-adjuvant treatment - the goal of this is to get the tumour to shrink as much as possible so that the surgery is the least invasive as possible. With the negative results of my genetic test, I am hoping even more that the tumour will shrink because that ups my chances of having a lumpectomy (removal of tumour and surrounding tissue) rather than something extreme like a mastectomy. I also need to have at least one lymph node removed because we already know that the cancer spread to my lymph node so that one has to go. I can no longer feel my lymph node and Dr. Dent hasn't examined it in while but back in August it was 3 cm (that's way bigger than a normal size lymph node) and my armpit was sore - I'm sure its way smaller than it was...
The most popular question I've had from people lately has been "what's next?" so here's the answer:

I have an appointment with the breast surgeon on December 17th which is five days after my last chemo treatment. I haven't seen Dr. Beaulieu since August so this appointment is for us to chat about the surgery options. Most likely, she will order an MRI of my chest so that she has an up-to-date picture of where things are at. I cannot have surgery until about 3-4 weeks after my last chemo treatment (my body needs time to recover) so that takes me to early January for the possibility of surgery. I have to say I'm a bit anxious about stopping chemo and waiting for surgery especially if by then I can still feel the tumour but I know this is the usual course of action so I shouldn't stress about it... 

I have an appointment with Dr. Craig on the same day as I see Dr. Beaulieu which is very convenient. This will be to change my vitamins and supplements in anticipation of surgery. Kudos to Dr. Craig because he was really the one that encouraged me to research surgery options to make sure that I fully understood every option - by research surgery options, I am referring to breast reconstruction. The thing is, is that there are a limited number of surgeons in Ottawa that do breast surgeries and guess what, just like breast cancers - there are about 8 different kinds of surgeries. Of course, not every surgeon in Ottawa does every kind of surgery - they are crazy complicated. Anyway, there was a doctor in Ottawa who got so sick of seeing patients that had no idea what their options were (not that he was sick of seeing his patients but he was frustrated that there wasn't a resource for these women) so he created a website. Here is it: http://www.breastreconstructioncanada.ca/ If you know anyone who is facing this decision send them this website - it explains each surgery in detail and also has a database of which surgeons in Ontario do what surgery. 


So, you are probably wondering why I am researching reconstruction options if I am getting more confident that I'll be having a lumpectomy...well its because triple negative breast cancer is very aggressive and has the worst survival rate of all of the breast cancers (when I say worst, I mean 77% as opposed to 89% - its not that bad). And most likely after this is all done and dusted, I will still have follow up appointments with my family doctor and oncologist for probably the next five years since with triple negative your highest recurrence rate is in the first five years (some research says three years, others say five). This means most likely MRIs and mammograms every year which can be stressful if they find something - and most likely they will find something if they are looking that hard - like cysts or benign tumours which you have to get tested, then wait for the results. So, I have still been thinking of mastectomy which would completely eliminate my risk, forever. You are probably wondering why I wouldn't do that in January - but you can't have reconstruction surgery right after a mastectomy if you are then going to have radiation. And if you are having a mastectomy and then nothing for a while afterwards, reconstruction is more limited - you can't have any surgery until six months after radiation. So, you are limited in options unless you are like me and hoping for a lumpectomy then want to take some time to think about things afterwards...

After surgery I will have radiation. I met with Dr. Caudrelier (my radiologist) briefly back in August when I first met Dr. Dent - we didn't chat too long as it my first appointment and if you remember, things moved quickly, I was back at the Cancer Centre having my first chemo treatment the day after I met Dr. Dent and Dr. Caudrelier. Anyway, radiation is very specific - pinpointed to where the tumour was - and its every day for a number of weeks. I think Dr. Caudrelier said it will be everyday for five weeks but don't quote me on that. I have an appointment with Dr. Caudrelier on January 28th so I'll know more details then. 


Okay, breast cancer lesson over. 

This week was a good week - I continue to feel good - I think its more because my chemo brain isn't as bad - yes that's a real thing. Sometimes chemo makes you feel sort of out of it and you can't remember things. For example, one night a few months ago Lesley was at my house to pick me up and it took me three tries to put Fat May in her cage. The first time I went downstairs to the basement and just fed her - I forgot to put her in her cage and up she walks to the back door as I'm putting on my coat. The second time, I put her in her cage but forgot to close to the door, so up she walks to the back door as I'm putting on my coat. The third time I repeated in my head as I walked downstairs "put May in her cage, put May in her cage" and I did it! That's what I mean by chemo-brain. I still am forgetful but overall I feel much better.

My co-worker Amy came over on Tuesday last week for a visit and brought me some snacks. Amy also inspired me to seriously start to get physical - can you say Participaction! 
 

Remember these two? If you do, you are old. 

At my last appointment with Dr. Craig, I mentioned that I bought a pedometer. He said I should aim for about 7500 steps a day. Dom has unfolded by treadmill (which hasn't been unfolded since I moved to Ottawa) and off I went! So I tried to use it a few times this week depending on what I am doing - the first day I did 8000 steps. I've also started to get back into some strength training too - oh and I've been curling Monday nights for two hours. Take that Hal and Joanne! 

Other than that it was a quiet week - Ann and Mike came over for a visit and brought a delicious Indian dish for dinner. I had my usual appointments for massage and PICC cleaning and then on Friday Dom had the day off so we went out for breakfast with his parents then looked for a new freezer. Did I mention that we are getting a freezer from Dom's parents for Christmas? I am so excited! This also means that I'm old - since when does someone get excited about getting a large appliance for Christmas? This old gal does. 

On Friday night we met some friends for drinks and dinner and then Lesley and I headed to see Amelia Curran - great concert and good times with Lesley. Oh and I got the most unique cancer present yet - not that there's a competition - but if there was one, this would win for most unique (and quite possibly the one that took the most time to create). This is from my friend Matt who widdled this by hand!! Amazing! 

I'm taking this over to Lesley who is a professional jewellery designer to put this on a chain.

On Saturday, Ann and I went out for breakfast (two days in a row!) then hit up some craft sales. The craft sales were really good and I was able to scope out some local people who make homemade, natural products like deodorant, face wash, soap etc. which is my new thing - trying to de-chemicalise (this isn't a word, I know) my life as much as possible. For anyone who is interested, my favourite one was Zoe's Corner https://www.facebook.com/zoescornerottawa

I also picked up other business cards so if anyone is interested, let me know and I'll email you the websites for them.

On Saturday night we went over to Lesley and Brian's for a turkey dinner - it was great - all the fixings. If you know Lesley, you know she's a good cook. She also made us some shepherd's pie earlier this week. Its good to be friends with Lesley. 

On Sunday we got a special package from Uncle Rick and Sharon - Uncle Rick's famous Christmas pudding and two little critters to hang out in our living room over Christmas. 





Dom put them on the record player then said, 'just what we need, more mice'. Not that we aren't grateful - but if you've been reading my blog or know anything about our summer, we've had a huge battle with mice in our shed as well as hanging out and partying in our walls and ceilings. Anyway, after this summer it somehow seems appropriate to celebrate Christmas with a few mice - I wonder if Uncle Rick and Sharon bought them on purpose? If they did, good joke - well played Uncle Rick and Sharon, well played. 

On Monday I had acupuncture - Tran told me that he is away from December 8 until the end of January! WTF! I am not impressed but I cannot hold a grudge - he goes with a team of other people (don't ask me who) who go somewhere (don't ask me where) and treat people - sort of like a medical mission, I guess that's what you'd call it. I've been having some weird hot flashes lately and the first thing that came to mind is that I am going through menopause! But no, Tran assured me its completely normal with the chemo to have these hot flashes so he worked on that and so far, its made a big difference. 

On the hair loss front, I am disappointed to say that my Fryer Tuck-like hair is falling out. Every day a bit more falls out - I even found some on my pillow this morning which I haven't seen for at least a month or so. But if the trade off is my hair falls out but my tumour shrinks, I'll take it. My left eyebrow has also managed to develop its own bald spot but I've been doing really well with pencilling on the eyebrows - even Ann complimented me on my handiwork on Saturday. I haven't been wearing my wigs yet for two reasons, one reason is that I'm lazy and haven't practiced wearing them at home so I'm not yet comfortable going out in public with them on - especially in this weather, have you noticed the wind lately? No way I'm risking having a wig blowing around! The other reason is that I know that once I'm back to work I'm going to have a lot of time wearing these wigs so there's no rush. 

And...of course we have to talk about Joan Lunden - her blog says that she's having a hard time with mouth sores - I did too when I was on the Red Devil chemo - but I don't anymore which is great. I don't know why they call them "mouth sores" it sounds gross - they are basically canker sores - not nearly as gross, right? 

So here's to the miraculously shrinking tumour (I stole this line from Pete) and guess what? Its only one month to Christmas - yay! And I have my second last chemo on Friday morning - double yay! 


Tuesday, 18 November 2014

Cancer Holidays - Week 10 - We should have bought a lottery ticket on Friday...

Yep, we totally should have bought a lottery ticket because I won the genetics lottery and found out on Friday that I do not have the breast cancer genes!!!!!!

I am very happy and feel like I won the lottery because people with triple negative breast cancer have a 50/50 chance of having one or both of the breast cancer genes - that's like flipping a friggin' coin odds - not great. I wasn't too worried about it until the few days leading up to my appointment, I had successfully put it out of my mind over the past few weeks but I was a Nervous Nelly walking into the appointment. So needless to say on Friday when we found out Dom and I high fived each other and afterwards I did a happy dance in the elevator. These results are also good news for my family - my parents, sister and cousins too. 

The genetic counsellor also did a calculation on what my chances are of developing cancer (other than Triple Negative) and determined that based on my family history and my details I have an 18% chance of developing another type of cancer up to the age of 80. That might sound like a lot but its not actually, she said that for every member of your family that has cancer that increases your risk 3-5% then there are your own factors - weight, age, overall health, physical fitness level - that all influences that - so you can't really do your own calculation but you could get an idea based on the number of blood relatives that have had cancer. Also of note, people who smoke are 15 to 30 times more likely to get lung cancer than those who do not smoke - that's a scary stat for you smokers who are reading this...Basically she said that I'm in good shape and 18% chance isn't bad for the next 43 years. 

Triple negative has its own recurrence rate and its the highest in the first three years of having it - around 30 to 35% chance of it recurring somewhere else in the body (that's called metastatic cancer - its still Triple Negative breast cancer cells - they just attach somewhere else in the body) - but that stat also changes depending on how well your tumour responds to the chemo - if it responds really well and maybe even disappears then you are in a good place. So based on that, so far so good for me because since this new chemo my tumour is decreasing in size rapidly. After the three years, the chances of it drops dramatically too - so as long as I make it through the first three years, I'm rockin'.

That's a lot of stats so let's move on and get back to last week - on Wednesday we went to Montreal to see Alt-J. If you don't know who this band is, they are a toe-tapping British Indie band and it was by far, the best concert I've been to in a long time - years probably. It was at the Metropolis in Montreal which is an old theatre so we stood in the balcony. The main reason the concert was so good was that everyone in the entire place was completely into the concert - no one was chatting through the concert - everyone was singing along to every song and honestly, the crowd was yelling so loud for an encore that I had to plug my ears. And Alt-J is a toe-tapping, sing along, good band. 




 We stayed at a really cool boutique hotel in Montreal too - called Zero Hotel. 



We spent our free time going to brew pubs so Dom could try beer - of course the only photos we took were of the beers that Dom tried - here's one with a snippet of me in the background. 



Our friend Marc took care of Lola and May while we were gone which was much appreciated - it was great to get away for a night. 

On Thursday we had to get back to Ottawa for my PICC cleaning and an appointment with Dr. Dent. Dr. Dent had a student with her that day - so the student came in to see me before her and I swear she was like 16 years old but as I frequently remind Dom, people that look like teenagers to us are probably about 10 years old than they look. Anyway, she seemed nice except she called me Ms. Knight which made me feel old - I told her to call me Melanie. So we chatted about how better I felt with this type of chemo and that my side effects are virtually non-existent. I told her that I go to acupuncture and massage and thought this helped and she agreed about the massage but didn't really acknowledge that I said the word "acupuncture" which was weird and yet completely consistent with everyone else at the Cancer Centre. I told her I wanted Dr. Dent to examine me (she hasn't done so since just before Thanksgiving when I went in freaking out about my swollen lymph nodes which ended up not be swollen once I saw her). 

So Dr. Dent came in and examined me - what I mean by this is that she took a look at my tumour - and she was a bit more chatty than usual but I credit that to her having a student. She was really impressed with my baby legwarmer over my PICC line too. Anyway she was pleasantly surprised at how much my tumour has shrunk. She was like "wow your tumour was about 6 cm when you first came here and now it must be about 1 cm". Remember I said Dr. Kehoe joked that Dr. Dent doesn't carry around a tape measure? Well she should, because her eyeball measurements are not accurate - my tumour is more like 3 cm now - did I mention I have a tape measure and measure my tumour regularly? Anyway, this was my internal conversation in my head, I did not tell Dr. Dent that she needs to get herself a tape measure, I just didn't get overly excited when she said 1 cm. Regardless she was so pleased that I was doing so well she said she didn't need to see me before my next chemo and that she'd see me before my last chemo treatment - did I mention that's December 12? Yes!!!

Friday was chemo day and it was a full day with a blood test, genetics appointment, then chemo. Dom got me settled for chemo and took a picture because he said I looked like a grandmother - I corrected him and said Nanny Knight (that's what some of my friend jokingly call me).  Ironically, the real Nanny Knight is on side bar to the right.



I look really tired in this photo but I think that's because we had to get up early for all of our appointments that day - and its my lack of eyebrows, they are still fading - sigh. Anyway, right after Dom left, Nanny Knight got a phone call from security at the hospital who told me that someone had just turned in my wallet - I didn't even know I lost my wallet - that sounds like a Nanny Knight thing to say, I know. The only thing I thought was that as we were walking to chemo, my purse felt light and I was immediately proud of myself for having a purse that wasn't overly heavy! Security said that everything seemed intact - even the $20 bill was still in there - so I told them that since I was hooked up to the chemo machine and Dom just went home, we wouldn't be able to pick up my wallet for a few hours. About 15 minutes later, in walks a security guard to hand deliver my wallet to me - what customer service! I thanked him and double checked to ensure that everything was there - and of course it was. This is what I call karma - because you know what?  If I found someones wallet - I would take it to security too - and if I worked in security, I would have delivered a lost wallet to its owner too.

We had a quiet weekend of running errands and just hanging out. I didn't sleep well Friday night because of the steroid shot they give you when you get chemo but I made up for it on Saturday sleeping for 12 hours. On Sunday night Kim and Dave brought over some dinner with a thank you card from their wedding and a gift certificate for The Keg which is so great - we're going to use it on a night out over the Christmas holidays since this will be a quieter Christmas than usual. 

I'll stop there but with one more winner of the cancer present competition - not that there is one but if there was, this would be a winner. The best cancer card I've gotten so far from the Petitts - Doug and Charlene - who are my mom's good friends. I love this card, totally my sense of humour. I don't need to say anything more...

 

 
 

 

Thursday, 13 November 2014

Cancer Holidays - Week 9 - Cancer gift competition has a winner (so far)!

This was a very busy week - the furnace conversion (from gas to oil) started bright and early on Wednesday morning. We also had our window sills repaired and window wells installed at the same time so we had a lot going on at the house this week, I felt like we were on one of those HGTV shows.

On Thursday my friend John Wu came over and delivered me ginseng. Tran wants me to start to drink ginseng in tea to help with my energy level so I asked John if he could buy me some because you have to get it at an Asian grocery store and its supposed to thinly sliced etc etc - it was just easier for John to get it for me. So, he took time out of his lunch hour to go buy it for me and deliver it to me at home - how nice is that? Dom was disappointed that he missed John Wu again - because John and I used to work together, I used to tell Dom a lot of stories about John and so John is sort of like Polkaroo - missed him again.

On Thursday night I met my friend Trena for dinner. I've known Trena for almost 15 years - I met Trena working at the River Run Centre when I was in university. We figured out that we hadn't seen each other in five years so needless to say we had a lot of catching up to do. Its great seeing old friends (friends that you've had for a long time, not old as in age - you know what I mean) because you hang out and chat just like you saw each other yesterday. We ate at one of my favourite restaurants in Ottawa - The Buzz. I had steak and sweet potato fries (yes, a bit of a cheat on my diet) and veggies. 

My Mom left for home on Saturday and three of my friends came up on Saturday afternoon for the night - Erika, Elaine and Leanna. Alison and Tina were also supposed to come up but unfortunately Alison came down with a bad cold and Tina had sprained her ankle so she couldn't drive - they missed out on the best cancer party ever! We had a great time - what did you do we ask? - well pretty much nothing. We hung out, chatted, ate some food and then ordered Chinese food (did I mention that Thai and Chinese food is the easiest thing for me to eat? minus the rice of course). Here we are the next day before the girls left:

Its great to have visits like I did this week because it makes me completely forget about the whole cancer thing for at least a little bit. We figured out that we've been friends for 18 years (this also includes Alison, Tina, Amy, Heather, Carmen) which is crazy to think that first year university was 18 years ago because we all seem to act the same!

Oh and we found out that Elaine knows the founder of the Lug company. For those of you that don't know its a great company that makes really good bags, purses, travel gear and everything that you might need - and its all very smartly made - gym bags with separate compartments to put your stinky gym shoes in etc. I broke out my Lug collection to show the girls:


On Sunday after the girls left, I didn't do much - just hung out and had a nap. My co-worker Natalie dropped off dinner - some butternut squash sauce, zucchini pasta and some freshly squeezed juices. Very healthy and very good.

On Monday morning I was at the OICC at 10:30 am for acupuncture and a check up with Dr. Craig. Acupuncture was good as usual - after which I met with Dr. Craig. I told him how good the Taxol is compared to the A/C and that I have very few side effects (although I give that credit to massage, acupuncture and my diet and supplements that Dr. Craig has given me).  As usual, Dr. Craig was impressed and happy with my progress. He did tell me that my ferritin (iron) levels were high (from a blood test that he ordered) but since my red blood cells were low it probably means that the high iron is due to the chemo damaging my liver and my liver cells bursting releasing their iron stores - doesn't that sound crazy! My poor liver - but don't worry this is apparently very normal. I also told him that over the past few weeks I've relaxed a bit on the carb thing and have been having a piece of toast in the morning and sometimes using a tortilla shell or wrap to eat veggies at lunch because I am hungry all of the time ever since my chemo meds switched. Dr. Craig didn't think it was too bad and instead said that I should continue with it to help me put on more weight (I've lost about 15 lbs since the whole cancer holidays started). Interestingly he also said that most people have the opposite problem when they are going through breast cancer treatment - that they gain weight - because their activity level goes down, their calories don't change or increase because they don't get nutrition counselling and sometimes drugs that people take make them gain weight. So all in all, having to gain weight is good problem to have at this stage in my treatment.  

I also asked Dr. Craig about dairy because when I first went to see him months ago, I had declared I wasn't eating dairy anymore (because of some of the books I had read when I first was diagnosed - and don't forget Joan Lunden, she also stopped eating dairy when she was diagnosed). Anyway, in Dr. Craig's opinion a little bit of dairy is okay - scientifically speaking no one needs to drink to milk other than kids - and so he didn't encourage me to start back on milk but assured me that a bit of cheese and greek yogourt would be okay. Yeah that's right - a bit of cheese! The first thing I did when I got home was ate a piece of Brie but you know what? It was good but not great but it was good - I think my taste buds are changing which isn't surprising. Its probably like onions - Dom is allergic to onions so we don't eat any and when I do eat onions now I don't like them nearly as much...this seems sad to me when I think about this and cheese...    

So all in all, Monday was a good day. Oh and if you aren't on Facebook or haven't seen it yet, here's a photo of Tran and Dr. Craig:


In case you haven't figured it out - Tran is in the middle and Dr. Craig is on the right. Awesome guys. Rabia is on the left, she's a care coordinator at OICC - she always gets answers for me from Dr. Craig when I've questions about my diet. Great people.

My co-worker Wendy dropped off food on Monday afternoon - stir fry and brussel sprouts - it was really good! Wendy is a good cook FYI in case anyone from work is wondering. 

Oh and I was feeling so good that I went curling for the first time this season! I only planned on staying until 10:00 pm (because of Tran required bedtime) and I would have stayed longer but I was so hungry I had to go home just after 10:00 pm. Every week since the league started, Jordan has done a game recap for us which is great because then I don't miss a beat of how the team is doing. Here's Monday night's recap if you're interested: 

Game 5 Recap:
Game 5 had all the makings of a Hollywood film. Not only was team Strategic Incompetence playing a team equally as low in the standings (House Rockers and SI had both had accumulated 0 wins) but the team captain had returned: the Leonardo to our Ninja Turtles. Mel made an immediate impact nailing the “heads” call at the opening coin toss.

End 1:
With Kate filling in for the vacationing Hieu and Mel activated off IR, the team realized they had five players – or, 1 too many. By slowly using math, a new structure was designed by which two players would combine into a single player by splitting throws and alternating sweeping each end. Jordan missed the start of the game because he was giggling, imagining two people sharing one broom and sweeping at the same time or two people gliding out of the hack, hands intertwined, releasing a single rock simultaneously: Think synchronized curling. In spite of (because of?) his non-involvement in the end, SI carried the early coin toss momentum into a 1-0 lead.
Score: 1-0 

End 2:
Sometimes curling is a gritty sport and sometimes it’s a sport of poetry and finesse. This was a gritty end. Anne and Kate provided some serious sweeping. Both teams struggled to read the ice and either powered rocks through the house or had their sweepers pouring sweat as they dragged them across the hogline. The house was there for the taking. Whether it was Dave providing an audience of 1, the lucky ghost of Suzie Duford, Mel’s leadership, or the team staying fresh through the “5 people 4 positions” strategy; SI actually increased their lead.
Score: 3-0

End 3:
The team actually began to worry at this point that they would, for the first time, have to buy their opponents beer after the game. No need to worry… At its core, curling is a sport of physics: In classical mechanics, linear momentum is the product of the mass (the weight of the stone) and velocity (the weight of the throw) of an object. Once the forces of resistance (the ice) become greater than those of momentum, the object stops. End 3 was an “End of Resistance”: perhaps not physical resistance but certainly a moral resistance. Jordan and Anne continued their competition to see who could put more rocks short of the hogline. Kate lost her glider and, in the spirit of continuing the team-sharing, used Jordan’s; which was large enough for her to sit inside and use like a luge. Kim and Dave designed a solid strategy; which the team lacked the skills to implement. Mel was able to draw SI close but team HR used the hammer to secure their first point of the match.
Score: 3-1

End 4:
Before the first stone of End 4 was thrown, Jordan had finished his beer. That would be the highlight of this End. Team SI continued to play as if Sheet 4 was tilted against them. Kim and Kate threw some respectable stones – Kate once again found chemistry with “Groovy” Stu Cranberry. Anne admitted she kept getting curling confused with crokinole; game of differing rules, scale and equipment. When it came Mel’s turn to play hero, team SI was in a tough spot. With Jordan incorrectly directing her throw, Mel placed a spinning arching stone that tumbled into the house, perfectly glided between the two of the three sitting blue stones, connected with neither, and continued out the backdoor of the house. To make matters worse, the team lost Mel to bedtime.
Score: 3-4

End 5:
End 5 started with Kim explaining to Jordan that the skip sets the sights for the thrower, using their broom; Jordan had been (all year I might add) aiming for the skip’s body. This helped explain but not excuse his season-long inaccuracy. Silently, Anne was collectively blamed for bringing him. Kate opened the end by sending Stu and his co-rock Jackie Cranberry into the shallow blue ring. Anne followed with some hot rocks. Unfortunately, Team HR began playing less like the computer programmers they looked like and more like seasoned curlers, picking off SI’s red rocks one by one. Kim kept hope alive with her final stone, tying the game.
Score: 4-4

End 6:
By the time End 6 rolled around, the clacking sound of players falling on the ice and sending their broom bouncing away had become commonplace; no one is sure why so many spills occurred all around us. While most teams had retired to the lounge to watch the handsome Cam Newton’s Carolina Panthers lose another Monday Night Football game, teams SI and HR continued their death match. Kate’s guards were followed by Anne’s hard hitting take outs which were followed by Jordan’s misses. This set up a difficult shot for Kim yet she zigzagged a shot through the mayhem into the house and sat just barely outside the closest blue stone. Team HR, for some reason, threw their final stone through the house, nearly costing themselves the game, but when the dust and stones settled, Team SI had lost. Again.
Final score: 5-4 

Pretty impressive since Jordan doesn't take any notes or photos while we are playing - I couldn't remember half of this stuff...

On Tuesday my friend Krista came over for a visit - good times, we were due for a good sit down and chat. I also had a massage on Tuesday which was great. On Tuesday night we had two visitors. One was my friend Kersten who I haven't seen in quite awhile and she brought me a gift from New York City - which is the best cancer gift yet! Not that there is a competition, but if there were one and I was the judge of the cancer gifts then so far, Kersten wins!



That's right, in case you are wondering, its a onesie! And super comfortable, I'm going to wear it all winter - hopefully I don't get too comfortable and start to wear it out in public - although Kersten and I did discuss how good it would look with a pair of UGGs, just saying.

Our friend Marc also came over to pick up the keys because he dogsat for us on Wednesday night because Dom and I went to Montreal - but I will leave that for the next blog entry - this one is sort of long because of the awesome curling recap and I have chemo #6 tomorrow that I have to get ready for - also I go in tomorrow for the results of my genetic test (to find out if I have the breast cancer genes) so its going to be a big day but I promise, my next entry will be soon - probably on Sunday. 

Until then, if you've got a onesie - rock it! May the cancer gift competition continue...  


Tuesday, 4 November 2014

Cancer Holidays - Week 8 - More than halfway there!

That's right, I'm 62.5% through my chemo treatments, not that I'm counting or anything - but I'm more than halfway there!  

Friday was a long day hanging out at the cancer centre - Dom and I got there at 9:00 am and we didn't leave until after 3:00 pm. So for this chemo, they have to hop you up on Benadryl and a steroid just in case you have an allergic reaction, needless to say for the first hour of chemo I napped. But before that, we went over all of my blood work with a young, eager nurse named Katie - she was 25 and I kept thinking how young that is! She reminded me of my cousin Katie because she was very thorough and had such a nice disposition. Turns out I was still anemic - more so than I was on the Tuesday when I saw Dr. Kehoe. Katie, being the thorough gal that she is, wanted to double check with Dr. Dent that my low red blood cell count was okay and I didn't need a blood transfusion. Dr. Dent was fine with just watching my red blood cell count and relying on me to report on how I am feeling. Anyway, Dom left once the chemo started and I napped. 

They have to check your blood pressure and pulse every hour while you are getting this chemo so I didn't stay asleep too long before they woke me up for the first stat check. I spent the rest of the time listening to podcasts and watching people - which is quite interesting and sometimes annoying - there was a lady across from me getting chemo and as she was sitting there she was going through her wallet counting her money and before she touched each bill, she licked her fingers and all I wanted to do was go across the aisle and tell her how dirty money is and she really shouldn't stick her finger in her mouth while counting money - all while squirting hand sanitizer on her hands. Don't worry I didn't, I just laid there imagining all of the germs she was putting in her mouth. I also find that a lot of people stare at me when I'm getting chemo and the only reason I can think of, is that I look so young (haha) but seriously, other people typically have a good 25+ years on me who are getting treatment - its either that - or they are wondering if that is still my real hair poking out from under from fashion toque.

Oh and I enrolled in a drug study that is researching the effects of taking a small dose anti-coagulant. This drug is commonly given to people who have hip and knee surgeries but not approved for people who are undergoing cancer treatment. Did you know that people who have cancer are at a higher risk of having deep vein thrombosis? That's a bad blood clot. I didn't know this, well maybe I did, they may have told me this when I first started chemo but with 'chemo brain' (yes, there is such a thing) and everything else I probably forgot. So that's how I killed part of the six hours of chemo, reading the study proposal and talking to the person about the study. Oh and I just could not stop staring this chick's eyebrows - I look at everyone's now since I am more obsessed with eyebrows now that mine are slowly disappearing. At first, I was just so fascinated because they were obviously drawn on but they were so perfect and symmetrical I kept wondering how the heck this chick drew these eyebrows on so perfectly every day - and they weren't two pencilled lines, they were thick - hence, the fascination about the symmetry. Dom told me afterwards that they were tattooed on - I was like oh, that makes sense - but I would never get them tattooed on - especially that thick, although they were perfect...

And just an update on my hair loss - my left eyebrow is thinning faster than my right which is annoying me since my right side of my head is thinner than the left - talk about asymmetrical. But my hair is hanging on so far - we'll see how it does with this new chemo. Fingers crossed. For some reason my leg hair has not stopped growing despite that my armpits continue to be bald - so weird. Also, other than having perfectly bald armpits the only other positive side effect to chemo is that my nails grow like weeds - seriously, I have to trim them every week - and they are in beautiful shape too. Chemo Nurse Katie warned me that this new chemo might make them brittle so I continue to religiously apply hand cream several times a day, just in case. 

Okay, so Halloween - we got home around 3:30 pm and Dom started working on the finishing touches of our Halloween decorations. The hit of the night was Horace the Butler - everyone loves Horace because no one is sure whether he is real or not. 



Horace stands at the front door with his tray full of candy just waiting to scare the little kiddies. So, with Horace and the rest of our decorations (including two smoke machines and scary music) we were a hit of the neighbourhood. 





We had about 200 kids but were expecting double that, but it was still a good night, even Fat May dressed up as a Chubby Cheerleader. 



I felt fine on Friday night - no real side effects other than a bit achy and a bit of indigestion but no nausea, headaches or generally feeling terrible like before. Dom's friend Marc came over to help hand out candy in anticipation that I'd be MIA for the night but that wasn't the case - so the three of us hung out and watched movies while the guys handed out candy. 

I woke up around 5:00 am on Saturday morning (because of the steroids) and decided to start on some of my health forms that I needed to fill out for work since I was feeling so alert. Dom spent the day taking down the Halloween decorations and we headed to the bus station to pick up my mom. The weekend was pretty quiet, Dom's parents came over to give me my birthday present, a new bag perfect to carry around all my stuff for my 5 hour chemo days, a gift certificate to Sail for a new fall jacket and delicious dark chocolate  - thank you George and Lucie! I also got some tea, a shawl and some more chocolate from my mom for my birthday - thank you mom! Dom and my mom worked away at cleaning out the basement because we are getting our furnace converted over from oil to gas on Wednesday. 

Monday night I was pretty tired so I went to bed around 9:00 pm (yes, Tran would be proud) but I woke up around 11:00 pm super hot and once Dom took my temperature, we figured out I had a minor fever. I did feel like I was coming down with something all day so that wasn't a surprise. Dom gave me an extra strength Tylenol and I went back to bed. My mom woke me up at 9:00 am on Monday for my acupuncture appointment and other than being tired I as feeling way better than I was in the night and didn't have a fever. It was a good appointment - I had pins and needles on both the front and back this time. Tran said he'd help with my energy (which he has) and told me that I still had a bit of a fever (despite what my thermometer said) so he was going to fix that too. I thought that maybe I'd be able to go curling last night but I'm just not up to it yet but with the lack of side effects, next week is looking really good for a game. 

And it wouldn't be a blog posting without mentioning my friend Joan Lunden - so Joan and I are getting the same chemo drugs but in the opposite order. She got the Taxol first which I am getting now, then had surgery and is now getting A/C - the A/C is the one that people call the "Red Death" or the "Red Devil" - I'm not sure which nickname is worse... Anyway, when reading Joan's story in the People magazine and also on her blog, I kept thinking - how the heck is she able to exercise everyday and look so good in her video blogs? Well, I figured out the answer, its because she was on the good chemo (yes, that's what I call it) which is what I'm on now - and no wonder she felt good - I do too on this stuff! I'm not 100% but I am feeling significantly better than when I was on the Red Devil, my mind is alert, no stomach upset or headaches and today is Tuesday - the day I usually deflate after chemo and spend the day in bed - I was up at 9:00 am, just finished moving around some stuff in the basement and I'm off to the grocery store after this and I'll probably do some yoga this afternoon - take that Joan Lunden!